让这个小女孩过上正常人的生活是一个“我们永远都无法触碰到的梦”
A normal life is a ‘dream that we can never reach’ for this little Chinese girl
译文简介
2月7日，甘肃兰州，权女士堆了一个小雪人，用盆端到了2岁女儿病床前。据悉，权女士的女儿3个月时确诊脊髓性肌萎缩症，一直在医院卧床治疗，无法出门。
正文翻译
Duoduo, two, has had spinal muscular atrophy since she was just three months old. She cannot leave her bed, so to give her a glimpse of the outside world, her mother brings her snow.
二岁的朵朵在三个月大时便被诊断患上脊髓性肌萎缩症。她不能离开自己的床，所以为了让她能看到外面的世界，她的母亲将雪带到了她面前。
二岁的朵朵在三个月大时便被诊断患上脊髓性肌萎缩症。她不能离开自己的床，所以为了让她能看到外面的世界，她的母亲将雪带到了她面前。
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This is so heartbreaking. Really praying for miracles to happen and this girl will fully recover.
这实在太让人心碎了。我真心祈祷奇迹能够出现，这个女孩能够完全康复。
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
There is nothing that can break a mother's devotion and love to her child...
没有任何东西能够破坏一位母亲对孩子的爱与奉献...
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
The child’s suffering is heartbreaking. Sometimes I feel like life isn’t fair, I can’t take it anymore but seeing the child’s struggle and her mother’s incomparable strength and love, I feel like keep going and never give up easily. We are so much more than we think we are.
这孩子忍受的痛苦实在太让人心碎了。有时候我觉得生活很不公，我再也忍受不了了。但是看到这个孩子所承受的艰难以及她母亲那种无与伦比的爱与力量后，我觉得自己必须继续前进，永不放弃。我们比自己想象得要强大得多。
glad the medicine is more affordable for them now. it’s a hard life on not only the child but the other people around her also. best of luck to them.
很高兴看到他们需要的这种药物变得更加便宜了。这是一种非常艰难的生活，对她本人而言如此，对她身边的人而言也同样如此。祝他们好运。
It is not medicine. Just some kind of experimental drug. Only love and nutrition can help her improve the condition.
这并不是什么特效药，只是一种是实验性药物。只有爱和营养能够改善她的这种情况。
This is really heartbreaking. I pray that this little angel recovers and lives the life she deserves ��� And her family finds the happiness they are searching for. My heart goes out to them
实在太让人心碎了。我祈祷这个小天使能够早日康复，过上她应得的生活。也希望她的家人们能找到他们所寻找的幸福。我的心与他们同在。
IKEMEN Osaka-ben!【大阪弁】
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
我不知道该说些什么....我只能说，我很高兴看到她有一对深爱着自己的父母。我真心希望她的生活能够一切安好。
they are clearly overly emotionally attached to the baby , they should let her go as she's gonna have to spend the rest of her life on a ventilator and unable to walk , it would be like staying in a prison your entire life , sometimes its better to let go
这对父母显然是过度眷恋这个孩子了，他们应该让她去的，否则她的余生都得依靠呼吸机，而且还无法行走，这就好似让一个人在监狱中度过一生。有时候放手是更好的选择。
@Hinsberg Reagent I remember the CNN reported on a 5 year old with a similar condition - her parents asked her about what she wanted, since she also couldn't move much and had a ventilator. Maybe these parents could do the same, after a few years.
@Hinsberg Reagent 我记得CNN曾报道过一个有类似症状的五岁孩子---她的父母问她想要做怎样的选择，因为她也动不了，而且也得一直戴着呼吸机。也许几年后，这对父母也可以这么做。
@Hinsberg Reagent ofc theyre attached, thats their baby
@Hinsberg Reagent 他们当然会依恋，这可是他们的孩子啊。
Really sad. No words can express my sympathy.Stay strong and all the best wishes especially for a miracle for full recovery.
非常难过，言语无法表述我的同情。保持坚强，向你献上我最诚挚的祝福，特别是希望你能迎来奇迹，早日康复。
I have a cousin who is now 10 + years old.She has a condition called cerebral palsy which basically means, her normal developmental milestones are impaired.From simple muscle movement, to speech to swallowing.When she was born,She was immediately put into an incubator because of premature delivery (6months or something)She spent more than 6 months in the neonatal ICU.Upon growing up,She literally needs to be fed with special precautions due to very high risks of chokingHer mom literally had to give up her career to be her carer 24/7.At some point, my mom would go to their house to assist with my aunt in caring the child.Imagine 10 years of this.A mother's love is indeed immeasurable.....
我有一个同样从小被病魔折磨的表妹，她现在已经10多岁了。她患有脑瘫，也就是说她的正常发育受到了限制，从简单的运动，到说话以及吞咽。她刚出生时就因为早产（孕期六个月左右）被立马放进了保温培育箱。她在新生儿症状监护室呆了六个多月。在她成长期间，她需要受到专业的喂养，因为她有很高的窒息风险。她妈妈不得不放弃了自己的事业，全天候照顾她。有时候我妈也会去姑妈将帮着照看孩子。想象一下吧，这是怎样的10年。一位母亲的爱确实是无法被估量的....
What devoted and loving parents. Duoduo’s smile is precious ❤️ Wishing you all peace and courage from Canada.
真是一对无私奉献和慈爱的父母的啊。朵朵的微笑是如此的珍贵。希望你们能收获所有的平静与勇气，来自加拿大的祝福。
Amazing parents I'm glad that the medicine she needs is now free for her.
多么了不起的父母，她所需要的药物现在已经免费了（注：入医保），这点让我很高兴。
As long as she is trying to survive and her condition is ok, I think she will definitely have a great life with such a strong mom/family...
只要她还在努力活下去，并且她的情况能保持良好，我认为在这样一个伟大的母亲和家庭的陪伴下，她肯定能拥有精彩的人生...
When that baby smiled, i cried. Cant hold it. Hang in there lil angel
当这宝宝微笑时，我哭了。我没法忍住。坚持住，小天使。
Oh my heart..... I have tears while watching this child loved by her parents. They are so so strong . They don't even request donations. I pray pray Duo Duo can recover and live a normal life or at least will everyday feel her parents love and warmth towards her. It's too tough making decisions like this.
噢，我的心啊....看着这对父母如此深爱着自己的孩子，我留下了眼泪。他们是如此坚强，他们甚至不想要他人的捐款。我祈祷朵朵能够早日康复，过上正常的生活，或者是至少每天都能感受到父母给予她的爱和温暖。做出这样一个决定实在太艰难了。
I wish she would walk and talk one-day! Kudos to the parents.
我希望她有朝一日能走路和说话！向她的父母致敬。
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
It's hard to say .On one hand, they're just prolonging her suffering .On the other hand, you can't just let someone die without trying .Tough situation to be in
很难形容他们的决定。一方面，他们只是在延长她受苦的时间。另一方面，你无法不尝试一下就放弃一个人的生命。这是一个非常艰难的处境。
Its easy to say "let go" when its not your child. Shes a mother and no matter what loves her baby the most. Its damm sad
不是你们的孩子，所以你们才能如此轻易地说出“放手”。她是一位无论如何都深爱着自己孩子的母亲。这太tm让人难过了。
Adversities can wake up our inner strength, wisdom and courage. Very touched by this very dedicated couple. The illness aside it looks like Duoduo has grown well. The situation will only get better. All the best
逆境能唤醒我们内心的力量，智慧和勇气。我被这对夫妻的奉献精神深深打动。抛开疾病不谈，朵朵看起来成长得很不错。情况只会越来越好，愿你们一切安好。
Caring for their daughter is so expensive and time-consuming, physically and emotionally I doubt they can even consider having another child. So sad.
照顾他们的女儿要花费如此多的金钱和时间，从生理和心理上来看，我怀疑他们甚至无法考虑再要一个孩子，太让人难过了。
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
I wish there was something I can do to help, I hate seeing people suffer like this. Is there a gofundmepage for them? How can we get in contact with the family??
我希望自己能够帮上忙，我讨厌看到人们遭受这样的痛苦。有为他们捐款的GofundMe页面吗？我们怎样才能和她的家人取得联系呢？
cant imagine what the parents has to go through.i wish no parents should go through this......only can i wish....pray for this family.....
我无法想象这对父母经历了什么，我希望世界上所有的父母都不用经历这些...但我只能如此期盼着...为这个家庭祈祷...
Its really thoughtfull of them to stop accepting donation once the medicine added to gov insurance. Hopefully Duoduo will not bedbound forever
药物进入国家医保后他们就停止接受捐赠，他们实在太周全了。希望朵朵不会永远躺在病床上。
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
I think in situations like this it would be best to let the person suffering go as peacefully as possible instead of prolonging the inevitable. I can't imagine what such a situation would also do to them mentally...
我认为这种情况下，最好的办法还是让痛苦的人们平静地离开，而不是去拖延那不可避免的悲剧。我无法想象这种情况会对他们的精神造成怎样的影响...
Why let the baby suffer? Who is going to take care of the baby once the parents are gone?
为什么要让孩子受苦呢？当父母去世之后，谁来照顾这个孩子呢？
原创翻译：龙腾网 https://www.ltaaa.cn 转载请注明出处
People asking the caregivers to let their family member go probably haven't experienced something like this in their entire lives. As a caregiver of a family member suffering from a very serious rare disease, i can tell everyone here that even if we consider something like that for once, we get scared of actually doing it as soon as we look at their faces. I'll continue to sleep for only four hours for the rest of my life if i could see her face after waking up daily.... It's just that's how much I love her.
那些让监护人放手的家伙可能一辈子都没有经历过这样的事情。作为一个患有此类严重罕见疾病的孩子的监护人，我可以告诉这里的所有人，即便我们曾经考虑过这种想法，但是当我们看到他们的面孔时，这个念头便会让我们感到害怕。只要我每天醒来都能看到她的脸，我愿意继续在余生中每天只睡四个小时...我就是如此爱她。